Journal of Hayat
حیات
Hayat
Medical Sciences
http://hayat.tums.ac.ir
1
admin
1735-2215
2008-188X
fa
jalali
1403
10
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gregorian
2025
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30
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بهبود کیفیت زندگی مرتبط با سلامت کودکان مبتلا به بیماری های سرشتی قلب تحت جراحی ترمیمی: تأثیر برنامه انتقال مراقبت مبتنی بر خانواده
Improving the health-related quality of life of children with congenital heart disease undergoing corrective surgery: The impact of a family-based care transition program
مراقبتهاي پرستاري
Nursing Care
پژوهشي
Research
<span style="font-size:11pt"><span style="text-justify:kashida"><span style="text-kashida:0%"><span style="line-height:normal"><span style="direction:rtl"><span style="unicode-bidi:embed"><span style="font-family:Calibri,sans-serif"><b><i><span lang="AR-SA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black"><span style="letter-spacing:-.1pt">زمینه و هدف: </span></span></span></span></i></b><i><span lang="FA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black"><span style="letter-spacing:-.1pt">کیفیت زندگی کودکان مبتلا به بیماری</span></span></span></span></i><i><span dir="LTR" style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black"><span style="letter-spacing:-.1pt">­</span></span></span></span></i><i><span lang="FA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black"><span style="letter-spacing:-.1pt">های سرشتی قلب تحت تأثیر نیازهای گوناگون پس از عمل جراحی قرار می­گیرد. این </span></span></span></span></i><i><span lang="FA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black"><span style="letter-spacing:-.1pt">مطالعه با هدف تعیین تأثیر برنامه انتقال مراقبت مبتنی بر خانواده بر </span></span></span></span></i><i><span lang="FA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black"><span style="letter-spacing:-.1pt">کیفیت زندگی مرتبط با سلامت کودکان مبتلا به بیماری­های سرشتی قلب تحت جراحی ترمیمی انجام گرفته است</span></span></span></span></i><i><span lang="AR-SA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black"><span style="letter-spacing:-.1pt">.</span></span></span></span></i><i><span dir="LTR" style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black"><span style="letter-spacing:-.1pt"></span></span></span></span></i></span></span></span></span></span></span></span><br>
<span style="font-size:11pt"><span style="text-justify:kashida"><span style="text-kashida:0%"><span style="line-height:normal"><span style="direction:rtl"><span style="unicode-bidi:embed"><span style="font-family:Calibri,sans-serif"><b><i><span lang="AR-SA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black"><span style="letter-spacing:-.1pt">روش بررسی:</span></span></span></span></i></b><i> </i><i><span lang="FA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black">این مطالعه نیمه تجربی در مورد 78 زوج مادر- کودک مبتلا به بیماری سرشتی قلب تحت جراحی ترمیمی بستری در بیمارستان قلب شهید رجایی تهران در دو گروه مداخله (40 نفر) و کنترل (38 نفر) انجام گرفته است. نمونه</span></span></span></i><i><span lang="AR-SA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""></span></span></i><i><span lang="FA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black">ها در سال 1403-1402 به صورت در دسترس انتخاب شدند. داده­ها با استفاده از پرسشنامه کیفیت زندگی مرتبط با سلامت کودکان پیش از سن مدرسه در چهار مرحله جمع­آوری شد. گروه مداخله برنامه انتقال مراقبت مبتنی بر خانواده را در 11 جلسه و گروه کنترل آموزش­های معمول حین ترخیص را دریافت کردند. داده­ها با استفاده از نرم­افزار </span></span></span></i><i><span dir="LTR" style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black">SPSS</span></span></span></i><i><span style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black"> نسخه 22 و آزمون­های تی</span></span></span></i><i><span lang="AR-SA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""></span></span></i><i><span lang="FA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black">مستقل، </span></span></span></i><i><span dir="LTR" style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black">Bonferroni</span></span></span></i><i><span lang="FA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black"> و آنالیز واریانس یک و دو طرفه با اندازه­های تکراری تحلیل شد</span></span></span></i><i><span lang="AR-SA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black"><span style="letter-spacing:-.1pt">.</span></span></span></span></i></span></span></span></span></span></span></span><br>
<span style="font-size:11pt"><span style="text-justify:kashida"><span style="text-kashida:0%"><span style="line-height:normal"><span style="tab-stops:163.05pt"><span style="direction:rtl"><span style="unicode-bidi:embed"><span style="font-family:Calibri,sans-serif"><b><i><span lang="AR-SA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black"><span style="letter-spacing:.1pt">یافتهها</span></span></span></span></i></b><i><span lang="AR-SA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black"><span style="letter-spacing:.1pt">: </span></span></span></span></i><i><span lang="FA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black">در مقایسه درون گروهی نمره کیفیت زندگی در گروه کنترل و مداخله افزایش معنادار دیده شد (001/0</span></span></span></i><i><span dir="LTR" style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black">p<</span></span></span></i><i><span lang="FA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black">)، با این حال میزان افزایش در گروه مداخله بیش</span></span></span></i><i><span lang="AR-SA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""></span></span></i><i><span lang="FA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black">تر بود. در مقایسه بین گروهی نمره کیفیت زندگی در مرحله قبل از مداخله، بعد و یک ماه بعد از ترخیص تفاوت معناداری دیده نشد، اما در مرحله سه ماه بعد تفاوت معنادار به دست آمد (003/0=</span></span></span></i><i><span dir="LTR" style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black">p</span></span></span></i><i><span lang="FA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black">)</span></span></span></i><i><span lang="AR-SA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black"><span style="letter-spacing:.1pt">.</span></span></span></span></i></span></span></span></span></span></span></span></span><br>
<span style="font-size:11pt"><span style="text-justify:kashida"><span style="text-kashida:0%"><span style="line-height:normal"><span style="direction:rtl"><span style="unicode-bidi:embed"><span style="font-family:Calibri,sans-serif"><b><i><span lang="AR-SA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black">نتیجهگیری: </span></span></span></i></b><i><span lang="FA" style="font-size:10.0pt"><span b="" style="font-family:" yagut=""><span style="color:black">برنامه انتقال مراقبت مبتنی بر خانواده ممکن است بتواند کیفیت زندگی مرتبط با سلامت کودکان مبتلا به بیماری­های سرشتی قلب تحت جراحی ترمیمی مؤثر باشد. پرستاران می­توانند از نتایج این مطالعه در جهت افزایش کیفیت زندگی مرتبط با سلامت کودکان مبتلا به بیماریهای سرشتی قلب تحت جراحی ترمیمی استفاده کنند.</span></span></span></i><i><span dir="LTR" style="font-size:10.0pt"><span style="font-family:"Times New Roman",serif"></span></span></i></span></span></span></span></span></span></span><br>
<span style="font-size:11pt"><span style="text-justify:kashida"><span style="text-kashida:0%"><span style="line-height:normal"><span style="direction:rtl"><span style="unicode-bidi:embed"><span style="font-family:Calibri,sans-serif"><i><span dir="LTR" style="font-size:10.0pt"><span style="font-family:"Times New Roman",serif"></span></span></i></span></span></span></span></span></span></span><br>
<span style="font-size:11pt"><span style="text-justify:kashida"><span style="text-kashida:0%"><span style="line-height:normal"><span style="vertical-align:top"><span style="font-family:Calibri,sans-serif"><b><span style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black"><span style="letter-spacing:-.1pt">Background & Aim:</span></span></span></span></b> <span style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black">Postoperative care presents diverse needs that affect the quality of life in children with congenital heart disease. The objective of the study was to determine the effect of a family-based care transition program on the health-related quality of life of children with congenital heart disease undergoing corrective surgery</span></span></span><span style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black"><span style="letter-spacing:-.1pt">.</span></span></span></span></span></span></span></span></span></span><br>
<span style="font-size:11pt"><span style="text-justify:kashida"><span style="text-kashida:0%"><span style="line-height:normal"><span style="vertical-align:top"><span style="font-family:Calibri,sans-serif"><b><span style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black"><span style="letter-spacing:-.1pt">Methods & Materials:</span></span></span></span></b> <span style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black">This quasi-experimental study involved 78 mother-child dyads diagnosed with congenital heart disease and undergoing corrective surgery at the Shaheed Rajaie Cardiovascular Hospital in Tehran. The samples were divided to one of two groups: an intervention group (n=40) and a control group (n=38). Convenience sampling was employed to select participants during the 2023-2024 period. Data were collected using the TNO-AZL Preschool Quality of Life Scale across four assessment stages. The intervention group participated in 11 sessions of the family-based care transition program, while the control group followed routine discharge protocols. Data were analyzed using SPSS software version 22, employing independent <i>t</i>-tests, the Bonferroni test, and both one-way and two-way repeated measures analysis of variance</span></span></span><span style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="letter-spacing:-.1pt">.</span></span></span></span></span></span></span></span></span><br>
<span style="font-size:11pt"><span style="text-justify:kashida"><span style="text-kashida:0%"><span style="line-height:normal"><span style="vertical-align:top"><span style="font-family:Calibri,sans-serif"><b><span style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black"><span style="letter-spacing:-.1pt"><span style="layout-grid-mode:line">Results:</span></span></span></span></span></b> <span style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black">Within-group comparisons showed a significant increase in quality of life scores for both the intervention and control groups (<i>P</i><0.001), with the intervention group indicating a more pronounced improvement. However, between-group comparisons showed no significant differences in quality of life scores at baseline, immediately post-intervention, or one month post-discharge. Notably, a significant difference was observed three months post-discharge (<i>P</i>=0.003)</span></span></span><span style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black"><span style="letter-spacing:-.1pt">.</span></span></span></span></span></span></span></span></span></span><br>
<span style="font-size:11pt"><span style="text-justify:kashida"><span style="text-kashida:0%"><span style="line-height:normal"><span style="font-family:Calibri,sans-serif"><b><span style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black"><span style="letter-spacing:-.3pt"><span style="layout-grid-mode:line">Conclusion:</span></span></span></span></span></b> <span style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black">The implementation of a family-based care program may improve the health-related quality of life of children with congenital heart disease undergoing surgery. These findings suggest that pediatric nurses can utilize family-centered interventions to improve the health-related quality of life of these children.</span></span></span><span style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black"><span style="letter-spacing:-.3pt"></span></span></span></span></span></span></span></span></span><br>
<span style="font-size:11pt"><span style="text-justify:kashida"><span style="text-kashida:0%"><span style="line-height:normal"><span style="font-family:Calibri,sans-serif"><b><span style="font-size:10.0pt"><span new="" roman="" style="font-family:" times=""><span style="color:black"></span></span></span></b></span></span></span></span></span><br>
انتقال مراقبت, بیماری های سرشتی قلب, کیفیت زندگی, خانواده
transition care, congenital heart diseases, quality of life, family
372
386
http://hayat.tums.ac.ir/browse.php?a_code=A-10-431-7&slc_lang=fa&sid=1
Parvaneh
Vasli
پروانه
وصلی
p-vasli@sbmu.ac.ir