Showing 4 results for Chronic Disease
S Samiei, Z Parsa-Yekta, A Mehran, S Masouri,
Volume 9, Issue 2 (7-2003)
Abstract
This research is a descriptive-analytical study conducted with the aim of examining and comparing adjusted behaviors of children (brothers and sisters) suffering from a chronic disease, referred to treatment centers with the siblings of the healthy children of the same age, in Tehran. The research sample was a group of 300 children along with a pair of parents. They were divided into groups of 150 siblings suffering from a chronic disease and 150 siblings who were healthy. For sample-taking of the children suffering from chronic disease parents of the children referring to hospitals or hospitalized in wards, who had the required qualifications were also studied through simple random selection. In order to select healthy children and their parents, the parents of the children referring to specified treatment centers for receiving medication and clinical treatment were selected as the control group, through the simple random sampling method. The basis of research comprised of a questionnaire comprising of two parts. The 1st part consisted of demographic particulars and the 2nd part constituted the form of questions put to the child's parents, whose form was prepared on the basis of the standardized child behavior checklist in accordance with Achen Bach's parents’ report. The form consisted of two parts: one concerning social merit (6 questions on activities, social relations and studying performance of the child) while the other related to behavioral problems of the child (102 questions in relation to social problems, anti-social behavior, aggressive behavior, difficulty in concentration, physical complaints, anxiety, depression, isolation disorder in thinking, sexual problems and miscellaneous matters). The results in relation to the research objectives point out that there is by p<0.001 and p< 0.005 and in a sensible manner, the behavioral problems of the siblings suffering from a chronic disease as compared with healthy siblings are more and their social merit is less.
Sareh Jafari, Jamileh Mohtashami, Fatemeh Alaee Karahroudi, Samaneh Mansouri, Maryam Rassouli,
Volume 22, Issue 1 (5-2016)
Abstract
Background & Aim: Chronic diseases are one of the most prevalent health problems affecting the quality of an adolescent's interaction with others. Social support can be important particularly during adolescence due to the many internal and external changes that happen to a person. This study aimed to determine the levels of perceived social support and its correlated factors in adolescents with chronic disease.
Methods & Materials: In this cross-sectional study, 172 adolescents 11-16 years with a chronic disease referred to Tehran’s selected hospitals, were included using purposive sampling during three months in 2014. Data were collected through “children and adolescents social support questionnaire”. Data were analyzed by independent t-tests, one-way ANOVA, Pearson correlation coefficient and multiple linear regression on SPSS software v.22.
Results: The total score of perceived social support (45.46±5.88) was at a high level. Among the demographic factors, gender (P<0.01), ethnicity, parental education, family income, number of children, birth order, and having insurance (P<0.001) showed a significant correlation with perceived social support. Among the factors related to illness, the type of chronic disease (P<0.01), the number of hospitalizations (P<0.001), the lack of participation in group activities due to illness (P=0.04), school absenteeism rates (P=0.002) and academic failure (P<0.001) were significantly associated with perceived social support.
Conclusion: According to the findings of this study, given the level of perceived social support and its related factors, it is recommended to pay more attention to caring for adolescents with chronic disease at the community level.
Mina Hasan Zadeh, Parvaneh Vasli, Fatemeh Estebsari, Malihe Nasiri,
Volume 25, Issue 4 (1-2020)
Abstract
Background & Aim: Caring for children with chronic illness is associated with the care burden of families and affects their self-efficacy. In addition, family-centered care can have positive outcomes. The aim of this study was to determine the relationship of the perception of family-centered care, burden of care and self-efficacy in the mothers of children with chronic illness.
Methods & Materials: This descriptive-analytical study was conducted in 2019 on 220 mothers of children with chronic illness, admitted to pediatric hospitals in Tehran and were selected using the convenience sampling method. Data were collected using the Perception of Family-Centered Care-Parent, Perceived Maternal Parenting Self-Efficacy, and the Impact-on-Family Scale. Data were analyzed by SPSS software version18 using descriptive and inferential statistics such as Pearson correlation and regression tests at the significance level of 0.05.
Results: Results showed that perception of family-centered care is directly associated with self-efficacy and inversely associated with the burden of care (respectively P<0.001 and P=0.022), so that for each 1-unit increase in the score of perception of family-centered care, self-efficacy of mothers increased by 0.25 and the burden of care decreased by 0.23. No significant association was found between self-efficacy and the burden of care (P=0.962).
Conclusion: Given that family-centered care can lead to an increase in self-efficacy and a reduction in the burden of care, nurses can improve mothers’ self-efficacy and reduce their burden of care by improving family-centered care.
Leila Nikrouz, Fatemeh Alhani, Abbas Ebadi, Anooshirvan Kazemnejad,
Volume 26, Issue 2 (6-2020)
Abstract
Background & Aim: Self-control is the capacity to organize cognitive and emotional responses in order to provide continuous and adaptive behavior with ideal standards for long-term goals. Due to the high levels of care burden of patients with chronic disease, this study aims to explain the concept of self-control in the family caregivers of patients with chronic disease based on the family-centered empowerment model.
Methods & Materials: Data were collected through in-depth, semi-structured interviews with 26 participants (19 caregivers, four nurses and three patients with chronic disease) from June 2016 to August 2017 in southwestern of Iran. Data were analyzed using the directed content analysis approach. The documents recording, accurate description of details, member checking, peer checking, and maximum variation of participants, were considered for ensuring the trustworthiness of the data.
Results: “Transcendental self-control” of family caregiver was explained by four conceptual categories: “caregiver insight", "value prioritization in care", "acceptance of care responsibilities" and "committed care". By predicting the potential risks of playing the care role and deeply understanding the conditions of care while paying attention to the value prioritization outcome-centered and virtue-based care, the family caregiver accepts the care burden through positive thinking and expediency and modestly offers "committed care" while having competent care experiences.
Conclusion: The explanation of self-control concept based on family-centered empowerment model in the real field creates a clear understanding of this concept and leads to "commitment care" by family caregivers of patients with chronic diseases and in turn provides a basis for reducing workload in the clinical setting.
