Showing 2 results for Congenital Heart Disease
Fahimeh Sabeti, Masomeh Safarkhanlo, Reza Abaszadeh, Shima Haghani, Mahboobe Aliakbari,
Volume 27, Issue 4 (1-2022)
Abstract
Background & Aim: Caring for children with congenital heart disease is very challenging for their parents, and the mothers of these children have a low quality of life. The aim of this study was to evaluate the effect of discharge planning on quality of life among mothers of children with congenital heart disease undergoing surgery.
Methods & Materials: In this quasi-experimental study, 72 mothers of children with congenital heart disease referred to Shahid Rajaie Cardiovascular center in Tehran in 2019 were included in the study using the continuous sampling method and non-randomly allocated to experimental or control groups (36 in each group). Data collection tool included demographic questions and the SF-36 questionnaire, which was completed before and two months after the intervention. The intervention was performed in six thirty-minute training sessions at the time of admission, during hospitalization and discharge. The training follow-up continued for two months after discharge. Data was analyzed by the SPSS software version 20 using Chi-Square test, independent t-test and Fisher's exact test.
Results: The mean score of quality of life before the intervention was 58.93±19.35 in the experimental group and 64.93±16.78 in the control group, and there was no significant difference between groups (P=0.165). Two months after the intervention, the mean score of quality of life was 73.44±17.81 in the experimental group and 73.67±16.49 in the control group, and there was no statistically significant difference between groups (P=0.956).
Conclusion: The discharge planning did not improve the mothers’ quality of life. It is suggested that in addition to educating about proper care of the child, psychological support be provided for mothers while implementing discharge planning.
Clinical trial registry: IRCT20180501039489N3
Parvaneh Vasli, Zohreh Komijani, Meimanat Hosseini, Malihe Nasiri,
Volume 30, Issue 4 (1-2025)
Abstract
Background & Aim: Postoperative care presents diverse needs that affect the quality of life in children with congenital heart disease. The objective of the study was to determine the effect of a family-based care transition program on the health-related quality of life of children with congenital heart disease undergoing corrective surgery.
Methods & Materials: This quasi-experimental study involved 78 mother-child dyads diagnosed with congenital heart disease and undergoing corrective surgery at the Shaheed Rajaie Cardiovascular Hospital in Tehran. The samples were divided to one of two groups: an intervention group (n=40) and a control group (n=38). Convenience sampling was employed to select participants during the 2023-2024 period. Data were collected using the TNO-AZL Preschool Quality of Life Scale across four assessment stages. The intervention group participated in 11 sessions of the family-based care transition program, while the control group followed routine discharge protocols. Data were analyzed using SPSS software version 22, employing independent t-tests, the Bonferroni test, and both one-way and two-way repeated measures analysis of variance.
Results: Within-group comparisons showed a significant increase in quality of life scores for both the intervention and control groups (P<0.001), with the intervention group indicating a more pronounced improvement. However, between-group comparisons showed no significant differences in quality of life scores at baseline, immediately post-intervention, or one month post-discharge. Notably, a significant difference was observed three months post-discharge (P=0.003).
Conclusion: The implementation of a family-based care program may improve the health-related quality of life of children with congenital heart disease undergoing surgery. These findings suggest that pediatric nurses can utilize family-centered interventions to improve the health-related quality of life of these children.
