Showing 69 results for Care
Ghasem Ahmadi, Ali Elhami, Reza Baghizadeh, Hossein Moradi, Mahmoud Motaharinia,
Volume 10, Issue 0 (3-2017)
Abstract
Bioethics is an interdisciplinary course which includes public health. The public health is a general concept dealing with ethical, spiritual, cognitive, and physical issues. Ethical health is part of bioethics. This paper analyses the discourse between feminism and Islam regarding the influence of gender on ethics. Considering influence or lack of effect of gender on ethics is the most important difference in Islam and feminism. The essence of the difference is in ontology and epistemology principle of both views. Islam considers God as decisive ethic and ethical behaviours while feminism considers human as ethic decisive. In Islam, gender does not play role in origin of humanity and does not cause perfection or imperfection and strength or weak of being human. However, gender influences ethic and ethical behaviours and causes difference in ethical behaviours between man and woman. But, .in feminism view, gender does not affect not only humanity origin but also ethical issues and behaviours. feminism granting ethical similarity between men and women overlooks ethic-gender roles leading to creation of a system that makes man and woman responsible for and tends to Bigender by proposing gender similarity between men and women ; this attitude has unethical outcomes and affects ethical health. This paper aimed to explain Islamic view (Quran and traditions) and outcomes of feminism view about gender effect on ethic along with investigating different sects of feminism.
Somaye Rostami, Ravanbakhsh Esmaeali, Hedayat Jafari, Jamshid Yazdani Charati, Seyed Afshin Shorofi,
Volume 10, Issue 0 (3-2017)
Abstract
Futile medical care is considered as the care or treatment that does not benefit the patient. Thus, perception of the clinical team regarding futile care is of great importance and it has an important role in the quality of nursing care and health of clinical team. This study aimed to determine the relationship between perception of nurses regarding futile medical care and their caring behaviors toward patients in the final stages of life admitted to intensive care units. This correlational, analytical study was performed on 181 nursing staff of the intensive care units (ICUs) of health centers affiliated to Mazandaran University of Medical Sciences, Mazandaran, Iran. The data collection tool included a two-part questionnaire containing demographic characteristics form, perception of futile care questionnaire, and caring behaviors inventory. To analyze the data, statistical tests and central indices of tendency and dispersion were used. Pearson’s correlation coefficient, partial correlation, t-test, and ANOVA tests were performed to assess the relationship between the variables. Findings illustrated that the majority of nurses (65.7%) had a moderate perception of futile care. In addition, it was only the mean working hours per week among the demographic variables that had a statistically significant relationship with perception of futile care (P<0.05). Given the moderate perception of nurses concerning futile care, implementing suitable interventions for minimizing the frequency of futile care and its resulting tension seems to be mandatory. It is imperative to train nurses on adjustment mechanisms and raise their awareness as to situations resulting in futile care.
Mohammad Aminizadeh, Mansoor Arab, Roghieh Mehdipour,
Volume 10, Issue 0 (3-2017)
Abstract
Nurses in the intensive care unit face a variety of ethical issues that can lead to moral distress. Nurses need moral courage for correct moral performance in a state of moral distress. The aim of this study was to investigate the relationship between moral courage and moral distress in nurses. The descriptive-analytic study of correlation type which aimed to investigate the relationship between moral courage and moral distress in nurses. A total of 310 nurses from special units of educational hospitals in Kerman were selected by census method. The tools Sekerka's moral courage and Corley's moral distress were used to collect data. Data were analyzed by descriptive and analytical tests of SPSS version 24. Mean score of moral courage of nurses was 42.71 ± 9.67. Moral courage was the highest in moral agent. The mean of moral distress was 56.03 ± 18.21 and the most moral distress was in the dimension of errors. There was a significant and negative relationship between moral courage and moral distress (R = -0.166; p = 0.003). Moral courage was different in position, type of department, and marital status. Moral distress differed only from type of department. The results of study indicated a significant and negative relationship between moral courage and moral distress. Strengthening the moral courage of nurses plays an important role in controlling and reducing moral distress. Therefore, nurses can reduce their moral distress by reinforcing moral courage and, instead, increasing the quality of care for patients.
Saeid Rahaie, Fatemeh Heidari,
Volume 10, Issue 0 (3-2017)
Abstract
Patients with advanced, progressive, non-curable, or hardly cured illnesses, found themselves in a situation where therapeutic measures have no effect in improving their condition and health status and they are gradually pushed toward death. Care provided to the patient, during this period, is known as end-of-life care which include life-sustaining treatments and palliative care. Life- sustaining treatments are such that give patient the chance for living longer but inflict lots of suffering upon the patient. While in palliative care, the patient probably survives for a shorter period, but suffers less. The question is whether the patient can choose between the two methods? Considering the Jurisprudential rule of “the necessity to safeguard human life”, most of the Muslim Jurists believe that the patient cannot rule out the first method (i.e. life- sustaining treatment). This study first examines the evidence of the rule, and explained the viewpoints of the Muslim Jurists about choosing between these caring methods, and proves that, despite accepting the rule, it is limited by the rules of “no hardship“ (la haraj) and “prohibition of detriment”(la zarar) and moreover the rule of “the domination”(saltanat). However, it can be said that, regarding the evidence of rule “the necessity to safeguard human life”, patients who are at this stage are excluded from the subject matter of this rule.
Zeinab Karimi, Mostafa Nadim, Fatemeh Binshifar,
Volume 12, Issue 0 (3-2019)
Abstract
In the Qajar era, European countries deployed many doctors accompanied by their military, religious, and political groups to Iran consistent with their political goals and interests. Meanwhile, the role of France was more and more significant than the rest of European countries. This essay aims to introduce French physicians, to express the performance of French physicians in Iran during the Qajar period, to introduce the activities and extent of the influence of French physicians on the medicine of the Qajar period, and to examine the elements that advance the presence of French physicians in Iran during the Qajar era. This research was conducted using library resources and descriptive-analytical method. The findings indicate that the influence of French medicine on the developments of modern medicine in Iran was very significant, to the extent that the modern medicine was based on French physicians in Iran. Overall, the French effects on medicine in Iran can be found in two forms: establishment of the hospital and clinics and the formation of a health council. In addition, French physicians took important steps in the field of medical education such as ophthalmology, surgery, microbiology, vaccination, writing medical books, and quarantine to prevent communicable diseases. Therefore, French physicians, unlike other European countries, which only improved their health status, also evolved in the history of Iranian medicine. Finally it must be said the Qajar community was well-received by French medicine and physicians; Because both the Qajar court and the community were in need of medical care and the French government needed a comprehensive medical presence in Iran to achieve its political and economic goals.
Foroogh Bandani Pour , Esmat Nouhi,
Volume 13, Issue 0 (3-2020)
Abstract
The necessity of governing ethics is desirable in the work environments and is universally accepted. Ethical performance is based on the ethical criteria that employees are expected to adhere to. The purpose of this study was to determine the relationship between ethical educational needs and ethical efficiency in health workers of Sistan province. This is a descriptive correlational study. Data of 377 healthcare providers of Sistan rural areas were collected through a multi-stage cluster sampling method. Information was collected with a valid and reliable questionnaire. The data were analyzed by SPSS 19 software using descriptive correlation, independent t-test, one-way ANOVA, and Pearson correlation coefficient. The results showed mean score of the need for ethical education of health care providers was relatively high (with respect to the maximum of the score), and the ethical performance of health care workers was low. There was also a significant and inverse relationship between score of ethical educational needs and ethical performance of health care providers (P >0.05). Based on the results, there was a significant and inverse relationship between ethical educational needs and ethical performance of health care providers. Providers who had a higher level of information and less educational needs had higher ethical performance. So, implementation of educational programs based on ethical educational needs is recommended for increasing ethical performance of health care providers as they are first-line practitioners who interact with people and health care clients.
Mehri Doosti Irani, Batool Alidoost, Leila Rafiee Vardanjani, Zahra Tayebi, Kobra Noorian,
Volume 13, Issue 0 (3-2020)
Abstract
Hospitalization in Intensive Care Units (ICUs) is a very stressful experience for the patient and family and their separation has not been confirmed in any of the studies. At present, ICU visiting is limited that makes several challenges. Therefore, this descriptive-exploratory study, aimed to explore strategies for overcoming the challenges of visiting This was a descriptive-exploratory qualitative study conducted through in-depth semi-structured interviews with 35 participants in educational hospitals of Shahrekord University of Medical Sciences including 6 patients, 9 patients' family members or friends, and 20 nurses during 2018. Interviews were continued until data saturation and then data analysis was performed using inductive thematic analysis approach. Participants stated two main themes for stepping out of visiting-related Challenges. (1) "Reducing the Need to Meet" through "Education about visiting rules", "Improving the Environment" and "Family Interaction" and (2) "Modified Meetings" through "Upgrading the Meeting Behind the windows", "using permanent monitor" and "flexible meeting". The ICU visits in Shahrekord hospitals, are limited like in other parts of the country. However, it is hoped that implementation of the extracted strategies in ICUs will solve many of visiting-related issues and eliminate the conflicting experience of patients, peers, and staff.
Mahmoud Motevassel Arani, Mojtaba Parsa, Seyed Hesamoldin Sayyedin , Nikzad Isazadeh, Abdolrahman Rostamian , Mohsen Parwiz, Hossein Dargahi,
Volume 13, Issue 0 (3-2020)
Abstract
Organizational culture is defined as prominent values and a set of key characteristics govern the organization. Paying attention to the importance of organizational culture increases staff’s productivity and job satisfaction. Therefore, the aim of this study was identification, counting and classification of organizational culture components based on Islamic-Iranian values by synthesizing approach and looking at health care organizations. First, 892 indicators were identified and counted by application of Pearson and English databases and using organizational culture, Islamic – Iranian culture, indicators, component, and health care organizations as key words, consideration of inclusion and exclusion criteria, field literature review, data entry into Excel software. Then using Delphi method and opinions of seven cultural elites in Tehran University of Medical Sciences, and after performing 11 stages, repetitive indicators in terms of meanings, concepts, and examples were merged and grouped into 39 components. Moreover, the extracted components were divided into three levels of organizational culture and the application of the components of each level in organizations were presented. Therefore, it is recommended the final components and application of each of them be used as an organizational charter in Tehran University of Medical Sciences.
Seyedeh Mahboobeh Rezaeean, Zahra Kazemi Gelian, Ghasem Kazemi Gelian, Zohreh Abbasi, Elahe Salari, Mahbubeh Tabatabaeichehr,
Volume 14, Issue 0 (3-2021)
Abstract
Failure to follow professional ethics in midwifery will lead to harmful risks, including an increase in maternal and infant mortality. The aim of this study was to investigate the barriers to professional ethics in midwifery clinical care from midwives ’viewpoints in hospitals specializing in obstetrics and gynecology in North Khorasan province in 2018. This cross-sectional descriptive study was performed with the participation of 141 midwives working in specialized obstetrics and gynecology hospitals in North Khorasan province, using classified sampling. The data collection tool was a questionnaire consisting of two parts: demographic information and barriers to professional ethics, in three areas: environmental and managerial and personal care. Data were analyzed using SPSS software version 22 and descriptive and inferential statistics. From the perspective of midwives, all three categories of environmental factors (73.94%), personal care (64.66%) and management (64.97%) were among the barriers to professional ethics. The most important barriers to professional ethics in the managerial dimension are staff shortages (80%), in the environmental dimension, biological changes in the body during work shifts (85.2%) and in the personal dimension, dissatisfaction with basic needs, such as insufficient income or adequate rest in midwifery (80.9%), was. Given the importance of observing professional ethics and the issues and problems arising from non-compliance, it is suggested that managers and officials make the necessary planning by hospitals to remove the barriers mentioned by midwives.
Mohammad Torabi, Mahsa Eslamipanah,
Volume 14, Issue 0 (3-2021)
Abstract
Nurses are among the members of the treatment team who have the most contact with Corona Virus Disease- 2019 (COVID-19) patients and their ethical decision-making is inevitable during patient care. On the other hand, nurses' motivation to implement end-of-life care is influenced by their attitude, awareness, and moral reasoning. The aim of this study was to investigate the level of ethical decision making of nurses and its relationship with the attitudes of end-of-life care of patients with COVID-19 in hospitals affiliated to Hamadan University of Medical Sciences in 2021. In this study, 180 nurses working in hospitals affiliated to Hamadan University of Medical Sciences were selected by convenience sampling method. Data collection tools included: demographic Information questionnaire, Nursing Dilemma Test (NDT) questionnaire, and Frommelt Attitudes towards End-of-Life Care questionnaire. According to the results, there is a direct relationship between nurses' ethical decisions and the attitude of end-of-life care (<0.05, r=0.819). The mean score of nurses' ethical decision-making indicates the low level of ethical decision-making (39.19 (5.3)) and the mean score of nurses' practical considerations (20.62(4.2)) showed that the process of nurses' ethical decision-making is relatively influenced by environmental factors. Also, the average score of nurses' exposure to moral challenges indicates that nurses are familiar with similar situations. The mean score of nurses' attitudes toward end-of-life care was reported at an undesirable level (81.58(7.8)). According to the results, by identifying the factors affecting nurses' ethical decision-making and educational planning to improve their decision-making level, it is possible to improve the quality of patients care while improving nurses' attitudes toward end-of-life care.
Mozaffar Ghaffari, Lotfali Khani, Azam Mahmmodi,
Volume 15, Issue 1 (3-2022)
Abstract
Compassionate care is considered one of the important elements of patient-centered and oriented care that gives health to the patient. Therefore, this study was conducted with the aim of designing and explaining the model of compassionate care of nurses based on moral identity and compassion for the lives of others. The present research method was done according to path analysis. The statistical sample included 250 patients with covid-19 and 250 nurses working in the corona department of hospitals in West Azerbaijan province in 2021, which were selected by available sampling method. Rodriguez's compassionate care questionnaire, Black and Reynolds' moral identity questionnaire, and Chang's scale of compassion for others' lives were used to collect data. The data were analyzed using Pearson, Bootstrap and Sobel tests and also through SPSS and Amos software program, version 24. The results showed that the variable of moral identify in interaction with the mediating role of compassion for the lives of others in explaining the compassionate care of nurses. A total of 0. 41 of the variance of compassionate care was explained through model variables. The direct effect of moral identity (0. 47), compassion for the lives of others (0. 36) was observed and it was significant in explaining the compassionate care model. Also, the result showed that the indirect effect of moral identity was found to be significant through the mediation of compassion and also towards the lives of others (2. 96). Considering the variable mediating effect of compassion towards the lives of others in the relationship between moral identity and compassionate care of nurses, it seems that the growth or strengthening of compassion towards the lives of others and moral identity can promote the compassionate care of nurses.
Hamid Moghaddasi,
Volume 17, Issue 0 (12-2024)
Abstract
The ethical use of patient medical records by healthcare providers is fundamentally guided by the patient's right to privacy and confidentiality, enshrined in patient rights charters. Users of patient medical records are categorized as authorized (e.g., clinicians directly involved in patient care) and unauthorized (e.g., administrative staff, external entities). This categorization informs both internal and external information disclosure policies. Authorized users access patient records based on the "need to know" principle, ensuring confidentiality while adhering to internal disclosure protocols. Unauthorized users have limited access, primarily governed by external disclosure policies that restrict access to personally identifiable information.
The transition from paper-based to electronic health records (EHRs) significantly alters the ethical landscape for healthcare providers. While paper records primarily raised concerns about physical security, EHRs present unique ethical challenges in three key areas:
1. Respect for Patient Information: Proper use of patient data requires a deep understanding of the ethical implications of accessing and utilizing sensitive information.
2. Privacy and Confidentiality: Maintaining patient privacy and confidentiality in the digital age requires robust security measures and a commitment to data protection best practices.
3. Data Integrity and Accessibility: Ensuring the accuracy, completeness, and accessibility of EHR data while maintaining patient privacy presents a complex challenge.
Healthcare providers, particularly physicians and nurses with extensive EHR access, must prioritize patient privacy and data confidentiality when utilizing information technology in patient care. This includes proactively mitigating threats to data security and adhering to strict ethical guidelines for data access and use.
Mohammad Shojaeinia ,
Volume 17, Issue 0 (12-2024)
Abstract
Artificial Intelligence (AI) represents a transformative and innovative approach in healthcare with the potential to revolutionize diagnostic, therapeutic, administrative, educational, research, and managerial processes. Given that AI systems influence reasoning, decision-making, and the delivery of care, their implementation faces challenges, particularly ethical considerations rooted in the unique nature of the healthcare system—where patient welfare, trust, and the autonomy of healthcare providers hold paramount importance. This study adopts a qualitative approach. Various information sources, including journals, articles, and publications, were reviewed. The applications of AI in clinical environments and its impact on individuals' interactions with healthcare systems, decision-making processes, and clinical workflows were analyzed, and relevant ethical considerations were extracted. The results indicate that the integration of AI in healthcare, despite its extensive benefits in prevention, diagnosis, treatment, prediction, decision-making, process automation, medication and therapeutic recommendations, surgical guidance, personalized medicine, telemedicine systems, and numerous other applications, is accompanied by a set of ethical considerations. Addressing these considerations is crucial to ensure the responsible and equitable use of these technologies. These include concerns related to patient privacy and data security, biases in AI systems, transparency, explainability, interpretability, accountability, informed consent, impacts on the relationships between healthcare providers and patients, equitable access to AI benefits, the appropriate and judicious use of technology, ethical use of automation, preservation of human dignity, effective oversight and regulation, legal and legislative issues, and long-term implications such as preventing misuse of predictive data by insurers or employers, among other patient rights-related issues. The utilization of AI in healthcare necessitates the development of ethical and legal frameworks that balance technological innovation with the humanistic principles underpinning healthcare systems. This ensures that while leveraging the advantages of AI, privacy, justice, equity, and human dignity are safeguarded. Emphasis on continuous monitoring and aligning AI-based systems with human values can foster trust in these technologies, ensuring that AI is used responsibly and adheres to ethical standards, ultimately serving to enhance public health outcomes responsibly and equitably.
Shabnam Rasoulpoor, Reza Nematollahi Maleki, Neda Tagizadeh,
Volume 17, Issue 0 (12-2024)
Abstract
Euthanasia, defined as the intentional ending of a patient's life to relieve intractable suffering, presents complex ethical, legal, and emotional challenges for healthcare professionals, particularly nurses. Nurses play a pivotal role in end-of-life care, making their attitudes toward euthanasia crucial for understanding its implications in clinical practice. This review aims to synthesize existing literature on nurses' attitudes about euthanasia to identify key influencing factors and areas requiring further exploration. This study was conducted using the PRISMA 2020 guideline with no time limitation (by December 2024). Eligible articles were selected following a search in various databases (Scopus, Web of Science, PubMed, ScienceDirect, Embase, and Google Scholar) using keywords and operators of “AND” & “OR.” The search strategy included “Perceptions” OR “Attitudes” OR “Nurse” AND “Euthanasia.” Data extraction and risk-of-bias assessment were performed independently by two reviewers (SR and NT). Studies were evaluated with the Appraisal Tool for Cross-Sectional Studies (AXIS Tool). A total of 21 studies were included in the review. The review revealed that nurses’ attitudes toward euthanasia vary widely depending on legal frameworks, cultural norms, religious beliefs, and personal values. In countries where euthanasia is legalized, such as Belgium and the Netherlands, nurses often report greater acceptance and willingness to participate in the process, emphasizing their role in ensuring patient autonomy and dignity. Conversely, in regions where euthanasia is illegal, nurses frequently express ethical concerns, moral distress, and reluctance to support the practice. Common themes include the need for clear guidelines, ethical training, and emotional support systems for nurses dealing with euthanasia-related situations. Nurses’ attitudes about euthanasia are influenced by a complex interplay of cultural, legal, and personal factors. While some nurses view euthanasia as an extension of compassionate care, others experience ethical dilemmas and professional conflict. This highlights the need for robust ethical frameworks, specialized training, and supportive resources to help nurses navigate the challenges associated with euthanasia in their practice.
Jalal Saeidpour, Alireza Hajizadeh,
Volume 17, Issue 0 (12-2024)
Abstract
As one of the countries with the fastest growing aging population, it is predicted that more than 20% of the Iran’s total population will be elderly in 2040. It is important to address ethical considerations in providing healthcare services to aged population. This study aimed to review the evidence related to ethical considerations in providing healthcare services to the elderly in Iran. This study was a scoping review conducted using the six-step protocol of Arksey and O’Malley. The English-language, Persian-language databases and Google Scholar, were searched without time limitation. After selecting studies and extraction the data, the narrative analysis was used to analyze the data. Providing comprehensive healthcare including, preventive, diagnostic, treatment, and rehabilitation services to the elderly needs to be based on humane-Islamic principles and values accepted by society. The most important ethical considerations required are: Maintaining the dignity and eminence of the elderly in all situations, considering ethics in communication with the elderly, ensuring autonomy and independence of the elderly in relevant decision-making, paying attention to the principles of justice and benefit in healthcare interventions, empathy and cheerfulness among healthcare providers, ensuring confidentiality and privacy and protecting information, paying attention to privacy, obtaining informed consent in healthcare centers, paying attention to religious and Islamic rules in caring for the elderly, the responsibility of government and non-government institutions in preventing stigma and discrimination against the elderly, carrying out timely and ethically-based care actions, healthcare providers' adherence to teamwork and scientific and professional behaviors, supporting the elderly as a vulnerable population group in prioritizing health services, preventing conflicts of interest in elderly care, and using safe, affordable, reliable, and evidence-based healthcare services for the elderly. It is necessary to pay attention to the ethical considerations identified in this study in providing healthcare services to the elderly. So, it is recommended that policymakers, managers, and healthcare providers take actions at the levels of the ministry of health, medical universities, and healthcare centers providing services to the elderly to promote humane-Islamic principles and values.
Maryam Kashani, Mansoureh Ashqli Farahani, Fatemeh Golestan,
Volume 17, Issue 0 (12-2024)
Abstract
The intensive care unit (ICU) environment presents numerous ethical challenges, contributing to significant levels of moral distress among ICU nurses. This distress negatively impacts their well-being and job satisfaction. Recognizing this critical issue, researchers have investigated the potential of moral empowerment programs to alleviate moral distress. This scoping review aimed to systematically synthesize existing literature on these programs and evaluate their efficacy in mitigating moral distress among ICU nurses. A comprehensive search of PubMed, Scopus, and CINAHL databases was conducted, utilizing keywords such as "moral empowerment," "moral distress," and "intensive care unit nurses." Fifteen articles meeting predefined inclusion criteria, including publication between 2010 and 2022 and a specific focus on moral empowerment programs for ICU nurses, were selected for analysis. The scoping review revealed that moral empowerment programs demonstrated positive outcomes in reducing moral distress among ICU nurses. These programs, encompassing workshops, case-based discussions, reflective exercises, and role-playing simulations, were designed to enhance moral reasoning, ethical decision-making, and moral resilience. Consistent findings indicated a significant decrease in moral distress among nurses who participated in these programs. Participants reported increased confidence in navigating ethical dilemmas, making sound clinical decisions, and effectively advocating for patients' rights. Moreover, moral empowerment programs fostered a sense of moral agency, empowering nurses to address ethical challenges proactively. Moral distress poses a significant challenge for ICU nurses, impacting their well-being and potentially compromising the quality of patient care. Moral empowerment programs offer a promising approach to mitigating this distress and enhancing ethical decision-making capabilities. The successful implementation of these programs requires a supportive work environment that fosters open dialogue and ethical reflection. Nurse leaders and educators play a crucial role in collaborating with ethics committees to develop and implement tailored interventions, including integrating moral empowerment modules into new nurse orientations and ongoing professional development programs. Continuous support through follow-up sessions, mentoring, and debriefing is essential to sustain the long-term benefits of these programs. Ethical consultation services and interprofessional collaboration further contribute to the ethical well-being of ICU nurses. While this review provides valuable insights, further research is warranted to investigate the long-term effects and broader implications of moral empowerment programs in the ICU setting.
Aydin Feyzi, Amirali Soheili, Samira Chaibakhsh, Fidan Shabani, Shiva Khaleghparast,
Volume 17, Issue 0 (12-2024)
Abstract
Advance directives (ADs) are legal instruments that enable individuals to express their healthcare preferences in anticipation of a future loss of decision-making capacity. These directives are particularly important in the context of chronic conditions such as heart failure (HF), a disease marked by progressive functional decline and unpredictable medical crises. ADs help safeguard patient autonomy by ensuring that care aligns with personal values and preferences, especially at the end of life. This systematic review and meta-analysis was conducted in accordance with PRISMA guidelines to examine the preferences of patients with heart failure regarding life-sustaining treatments and end-of-life decision-making. A comprehensive literature search was performed across PubMed, Scopus, and Web of Science databases, covering publications up to March 2024. Search terms included "advance directive," "advance care planning," "heart failure," and "end-of-life decision-making." Studies were included if they were original, peer-reviewed, full-text articles focusing on HF patients aged 18 and older. Non-peer-reviewed works and inaccessible full texts were excluded. A total of 25 eligible studies were identified and appraised using the NIH quality assessment tool. Extracted data included demographic characteristics, preferences for treatment, surrogate decision-making, and educational interventions. Findings from the reviewed literature reveal consistently low levels of awareness and completion of ADs among HF patients. Completion rates varied significantly across studies, reflecting potential cultural and systemic influences. Preferences for surrogate decision-makers overwhelmingly favored family members over healthcare professionals. A notable finding from Jawahri et al. (2016) indicated that patients who received video-based education were significantly less inclined to choose cardiopulmonary resuscitation (CPR) or mechanical ventilation compared to those receiving only verbal information. Additional qualitative insights, such as those from Formiga et al. (2004), showed that patients prioritized maintaining dignity, independence, and meaningful relationships over merely extending life. These patterns highlight the necessity of aligning care with patients’ broader goals and values. Across the 25 studies included, a total of 4,091 heart failure patients were analyzed, with a mean age of 68.22 years. Meta-analytic findings demonstrated diverse preferences regarding life-sustaining interventions: approximately 53.73% of patients favored such treatments, while 45.37% declined CPR. These statistics underscore a substantial variability in end-of-life preferences, further reinforcing the need for individualized care planning. In conclusion, patients with heart failure display heterogeneous preferences concerning end-of-life care, shaped by cultural context, personal values, and the type of information provided. Despite the established importance of ADs, significant deficits in awareness, understanding, and documentation persist. These findings point to a critical need for tailored educational interventions, improved provider-patient communication, and culturally sensitive approaches to advance care planning. Future research should focus on designing and integrating standardized AD facilitation tools into routine clinical practice to support truly patient-centered care.
Reza Khadivi,
Volume 17, Issue 0 (12-2024)
Abstract
Over the past few decades, various models have been employed to assess health needs and allocate resources within the health sector. These models include economic approaches based on cost-effectiveness, epidemiological methods using indicators such as disease burden or disparities in health outcomes between socioeconomic groups, and comparative studies between societies or countries. Efficiency and equity are often seen as competing goals in the resource allocation process, making it challenging for health systems to achieve both simultaneously. Traditional approaches primarily focus on deficiencies and adopt an individualistic perspective. When individuals experience limitations due to disease or disability, the relationship between their health status and social functioning is not always directly linear. Disease and disability inherently tend to widen the gap between individuals and their ability to fulfill normal roles, responsibilities, primary social dependencies, and desired capabilities. The capability approach advocates for respecting the life contexts of individuals and collaborating with them to enhance their skills, assets, and capabilities. Instead of focusing solely on deficiencies and addressing them through resource redistribution, this approach emphasizes empowering individuals to manage their lives with minimal external interference. These capabilities encompass skills that allow individuals to navigate their social, economic, and personal environments effectively. They include:
- Interpersonal skills for fostering meaningful relationships.
- Technical skills for managing routine aspects of life.
- Emotional and psychological resilience to cope with challenges.
- Purpose-building abilities to find meaning and direction in life.
Such capabilities equip individuals to manage both the normal struggles of everyday life and significant life events. As capabilities are enhanced, individuals gain greater control over their life circumstances, thereby becoming more resilient. The ability to control one’s life world is a fundamental capability. The unequal distribution of this ability forms the foundation of health inequities, as not everyone has the same capacity to exercise such control. Health needs assessments based on the capabilities theory align more closely with the goals of achieving and sustaining equity in healthcare. By focusing on empowering individuals and addressing their life contexts, this approach provides a more holistic and equitable framework for health resource allocation.
Mamak Tahmasebi,
Volume 17, Issue 0 (12-2024)
Abstract
Avoidable suffering at the end of life refers to the unnecessary pain and distress experienced by individuals with terminal illnesses—pain that can often be alleviated through effective palliative care practices. Addressing this issue is critical for improving the quality of life for both patients and their families during this challenging period. The recognition of holistic care, which considers physical, emotional, spiritual, and social needs, has fueled efforts to enhance end-of-life care to reduce suffering and uphold patients' autonomy. Numerous studies indicate that many terminally ill patients endure avoidable physical and emotional pain as they approach death, highlighting gaps in healthcare delivery. For instance, research from the National Center for Health Statistics reveals that a significant number of hospice patients report unmanaged pain despite the availability of effective interventions. Psychological distress, including anxiety and depression, is also prevalent among terminally ill patients, underscoring the need for comprehensive care that integrates mental health support. Furthermore, neglecting spiritual and social needs can leave patients feeling isolated and despairing, exacerbating their suffering. Ethical considerations in pain management at the end of life remain a subject of debate, particularly concerning the principles of beneficence and non-maleficence. The principle of double effect, which permits actions to relieve suffering even if they may unintentionally hasten death, continues to spark controversy among healthcare providers, patients, and families. Additionally, ethical dilemmas arise in advanced care planning, particularly in respecting patient autonomy while navigating complex end-of-life decisions. Addressing avoidable suffering at the end of life requires a multidisciplinary approach that honors patients' values and preferences while striving to minimize unnecessary distress. As research and clinical practices advance, healthcare systems must prioritize strategies to reduce avoidable suffering and ensure patients' dignity during their final days.
Reza Negarandeh ,
Volume 17, Issue 0 (12-2024)
Abstract
Patient advocacy is a cornerstone of ethical healthcare practice, encompassing actions that protect patient rights, uphold their autonomy, and ensure they receive high-quality care. Nurses are often seen as being in the best position to play this vital role. This conference abstract aims to provide a comprehensive understanding of patient advocacy and identify strategies for enhancing advocacy practices in healthcare settings. In this comprehensive review, scientific literature, including peer-reviewed articles, professional guidelines, and relevant policies, was retrieved and reviewed. Data extracted from the literature were synthesized using quantitative content analysis to identify different forms of patient advocacy, including clinical advocacy and systemic or workplace advocacy, as well as strategies to improve the necessary skills for each. Clinical advocacy involves ensuring patient safety, supporting informed decision-making, and advocating for appropriate pain management. Improving clinical advocacy requires a multifaceted approach that prioritizes building trust and rapport with patients to foster effective communication and shared decision-making. Encouraging patient participation in their care, supporting self-management strategies, fostering effective communication within the healthcare team, and staying informed about relevant ethical, legal, and policy developments are essential components. Workplace or systemic advocacy, on the other hand, focuses on addressing broader issues within the healthcare system that impact patient care. Improving systemic advocacy involves identifying and analyzing systemic issues, such as healthcare disparities, resource limitations, and policy barriers, through data collection, stakeholder engagement, and thorough analysis. Strategies to address these issues include policy advocacy, improved resource allocation, and quality improvement initiatives. Building strong partnerships with other healthcare professionals, community organizations, and policymakers is key. Additionally, promoting education and awareness within both the healthcare workforce and the public is crucial. Leveraging technology to enhance data collection, communication, and mobilization efforts can further support systemic advocacy initiatives. By implementing these strategies, healthcare professionals can effectively advocate for systemic change, improve the quality of care for all patients, and create a more equitable healthcare system. Patient advocacy is a dynamic and multifaceted role that requires continuous learning and adaptation. By embracing the principles outlined in this synthesis, nurses can effectively champion patient rights, improve the quality of care, and contribute to a more equitable healthcare system.